In the last three months I have been experiencing quite a few rapid improvements in health. I'm no where near better, and still spend pretty much all day in bed. But being able to get out and my world opening up has been so so incredible. I hadn't stepped outside for nearly four years so it has been pretty life altering :) I've been wanting to tell everyone for ages but was so nervous about getting peoples hopes up for it to be a one weekend thing that then vanished.
But it really doesn't look like it. It started quite small, I'd sit out on the ramp at night and get a little bit of a sense of independence, then a small walk round the block in my wheelchair. Being downstairs and being spontaneous/reckless meant that if I felt up to a little bit more now I could take advantage of it.
After a few weeks of this and being able to sit up a bit longer each time, I got to see my Nan and Grandads house for the first time in forever!!!
Then I went to the shop and bought bubbles, and went on my first trip out with Andrew that wasn't a hospital. I was amazed by everything and probably looked like the oddest person touching everything like I was 5. I even managed to go in the car to pick him up from the station.
The little car journeys began to lead into trips out places, nipping to tesco for a wheel around for ten minutes or round the corner to a garden centre. The world suddenly seemed massive like I could go anywhere and do anything.
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| Feeding the ducks at Grafton some meal worms. |
And yer new symptoms are popping up and showing themselves as I am doing more, dizzyness and tachchardia are back with a vengeance and weakness and headaches, visual disturbances when out are a bit disorientating and scary. I'm still really limited, and to many my world is still pretty tiny being in bed constantly and only nipping out for an hour every few days. But I don't really care at the moment, as to me and my family and friends this is the most exciting thing. I'm getting to see new things all the time, try out new places and my family have a tourist to show around the town I have actually lived in my whole life as its changed so much since I last went out :P The trips out are getting further afield and more adventurous now, I've even gone to Market Harborough for a trip :o, and today I managed to eat out for lunch for the first time :D
From sitting up more, standing occasionally for a few seconds I'm now sporting some leg muscles too :o they are still pretty useless at working but my legs were so scrawny and wasted from not being used at all. They look like actual legs now :D
Some photos of summer:
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| Beckworth's for a look round. |
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| Baby rat cuddles at Bugtopia. |
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| Successful Hospital visits. |
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| Lots of little shopping trips. (that is my mum driving a mobility scooter :P) |
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| Outside BBQ |
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| Wheel around wickies :) |
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| My first time on a swing at the pleasure park :D (I totally failed at even being pushed haha) |
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| Getting my nose pierced. |
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| Finally getting to see my Dad's house and going round for tea <3 |
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| Outside tea parties. |
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| Baking | | |
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| Me in a lift!!!!! (major hatred of them) |
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| Shopping trips with inviting beds ;) |
By far the most promising and exciting thing I've managed this summer is getting all the way to Breakspear with a lot of help from all of you but I think that is for another post another day to tell you all about the treatment plan and what's next :)
I have no idea why I've improved, or how or how long it will last for? This spur could
be gone tomorrow, or next year, no idea. But I do know I am making the
most of it whilst it is here and I'm loving making new memories.
Thinking about what next, where I can go, how far I can push it and
seeing lots more friends. As well as trying my very best to heal more, whilst I can get out and get to appointments and see the drs who can
hopefully make this not a blip and only the beginning of my journey to
getting well again, as its a long way to go.
Loads of love, Emily xxx
